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Rare Patient Voice, LLC

Company Address:
711 Hampton Lane
Towson, MD 21286
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This company is included in the following directories


Customer Contact

Wes Michael, President


Company Description

Rare Patient Voice recruits hard-to-find patients and caregivers for both qualitative and quantitative studies in the U.S. and Canada. We sign up patients in-person at patient events– conferences, walks, educational symposia, etc. Patients spread the word to others in their support groups, closed Facebook pages, etc. so we can provide quality respondents quickly (usually about two weeks). Some of our panels include: hemophilia, cancer (all types), multiple sclerosis, cystic fibrosis, sickle cell, HIV, PAH, Huntington’s, epilepsy, spinal muscular atrophy, lupus, etc.

Panel Titles and Features
Cancer Patients & Caregivers Size: 27,000 Panel Type: Telephone,Online
Hemophilia Nurses Size: 60 Panel Type: Telephone,Online
Hemophilia Patients and Caregivers Size: 1,000 Panel Type: Mail,Telephone,Online
Rare Disease Patients & Caregivers Size: 10,000 Panel Type: Telephone,Online

This firm offers proprietary (client specific) panel management services

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