Rare Patient Voice, LLC

Company Description

The origins of Rare Patient Voice  

Rare Patient Voice, LLC was founded in 2013 by industry veteran Wes Michael to provide patients and family caregivers with rare diseases an opportunity to be heard. Wes has over 40 years of experience in marketing research and over 20 years in health care marketing research. His vision and the enduring mission of Rare Patient Voice is to connect patients and family caregivers with opportunities to share their opinions with the researchers and companies developing products, treatments and services to improve lives. RPV is now an award-winning patient recruitment company spanning nine countries (and growing!).

A ground-breaking approach

Rare Patient Voice is unique in its approach, having been built on a foundation of direct connections with patients and word-of-mouth. We have assembled a panel of over 100,000 patients and caregivers through attending in person awareness events, meetings and conferences, by working with patient advocacy groups through a robust referral program and through social media. We cover more than 1,400 diseases and conditions, both rare and non-rare, have completed over 7,500 projects and now cover the United States, Canada, the United Kingdom, Italy, Germany, France, Spain, Australia and New Zealand. We have over 3,000 referral partners throughout the world who help us to find hard-to-reach patients and caregivers for studies. The time of patients and caregivers is valuable and to date, we have paid them over $10 million dollars for participating in research.

RPV provides what you need, when you need it 

At Rare Patient Voice, we can estimate what we can recruit for your study and obtain participants in two weeks. PAM, our DIY proposal tool, is available 24/7 for instant feasibility and pricing: www.qoneplatform.com/rpv/pam/. Our patient outreach team will work to find the patients you need, even if not currently on our panel. We have the ability with our partner Clinakos to obtain, with patient consent, medical records, pharmacy, lab testing, etc., with over 90% coverage for the patients we recruit for your study, to give you a complete 360-degree picture of their patient journey.